Last week we celebrated Sylas’ 9th birthday. And it was such a special moment for him and for me, as his mom and caregiver. For the very first time, Sylas had a birthday party with HIS friends! No family members. And no children of close friends that he’s not really close to. He had HIS own friends! Friends that like him just the way he is. I had a “joy tears” moment (a family joke) watching it all unfold in our backyard. I felt like he has finally entered a stage where he is hanging out with kids his age, who also want to hang out with him. They played board games at his request, and they swam together. At past gatherings he would just play by himself, and the other neurotypical kids would play with each other. It made me so happy to see him happily interacting with his friends.
As I watched him play, I reflected on how far he has come. From barely speaking at age 4, to arguing with his older sisters and singing and dancing to his favorite songs on the radio. From struggling with low muscle tone and imbalance, to walking the balance beam and jumping on the jump boxes at KidStrong, and scooting and riding his bike throughout the neighborhood.
The last seven years have been extremely dense for he and I, with many different therapy sessions and practicing at home. But it has been so worth it! I honestly marvel at him sometimes when he says certain things to me or his sisters. Especially when he is being a smart aleck. Sometimes I don’t know if I should scold him or hug him when he is saying cheeky things. I am just so happy he is engaging in our conversations and making progress every day.
If you are mom with a neurodiverse child, please work with them daily. Sylas would not be doing the things he is doing today if I didn’t commit to working with him on a daily basis. Early intervention is the key to helping these kids who are on the spectrum. Consistency is the solution! They will improve. Even if it’s with small gains initially. Then one day, it all starts coming together.
I know it is hard on this neurodiverse journey, but you can do it. Your child needs you. Find the support you need to help you on this journey, have faith, and do what’s required for the outcome you dream about.
Wishing you great progress on your journey,
Shelly-Ann
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